Ons verhaal achter de vzw


Wij zijn Simon & Fien, ouders van 3 zoontjes.


In juni 2022 moesten we veel te vroeg afscheid nemen van onze lieve Alois. Hij overleed op

3-jarige leeftijd aan de gevolgen van een zeldzame aandoening.

Iets meer dan 3 jaar lang hebben we met heel veel liefde voor hem gezorgd. Vanuit onze ervaring weten we als geen ander welke impact zo'n zware zorgen kunnen hebben op jullie leven.


Een oppas vinden is plots geen evidentie meer...

Daarom willen we met deze vzw ons steentje bijdragen. Als het lukt om een vrijwilliger te vinden, komen we met veel plezier helpen!


Vzw Alois werd opgericht in april 2023 en draait volledig op vrijwilligers. Het bestuur bestaat uit Fien Derudder, Simon Verstraete en Elise Cuyle.


Welcome To Holland

By Emily Pirl Kingsley


“ I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......


When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.


After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The flight attendant comes in and says, "Welcome to Holland."


"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."


But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.


So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.


It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.


But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."


And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.


But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland."